Cycling Latest News — 24 January 2013

 

 

 

 

 

 

 

Sharon’s Ride.Run.Walk This Sunday

Created in 1996 in St. Louis, Missouri, Sharon’s Ride is a unique memorial to Sharon
Rosenfeld, a nurse and teacher who cared deeply about epilepsy and epilepsy patients.
Honolulu is one of 7 sites across the country to host the Sharon’s Ride.Run.Walk. This
year will be Honolulu’s 11th year hosting the event.Adobe Photoshop PDF

More Than a Job

For Nancy Brown, serving as the Executive Director of the Epilepsy Foundation
of Hawaii is more than just a job. In addition to staffing the office, Brown holds
numerous training workshops and travels to mainland conferences. Brown is
tasked with helping to further the National Epilepsy Foundation mission to lead
the fight to stop seizures, find a cure and overcome the challenges created by
epilepsy. For Brown, such work is exceptionally relevant to her life, her commitment
runs far deeper than professional: It’s personal. Why? Brown has a
son named Daniel. And Daniel has epilepsy.

Status Epileptus

As a typical 11 year-old just beginning to gain more independence and responsibility,
Daniel was in gifted and talented classes at public school, on the student
council, a member of the video club and paddled with a canoe club. And
on December 13, 1998, the lives of Brown, her husband Les, and Daniel,
changed forever. Daniel presented status epileptus and was taken to Castle
Hospital Emergency Room. Over the next three hours, the Emergency Room
team worked to save his life. A trauma team was sent to transport Daniel to
Kapiolani Women’s and Children’s Hospital and he was admitted to the
Intensive Care Unit. By this time, Daniel was in a drug induced coma to stop
the seizing, and was on a ventilator to protect his airways. The doctors said
they presumed he had viral encephalitis, an inflammation of the brain. His
prognosis was not known.

Hope

Today, fourteen years later, the seizures remain the biggest problem. Daniel
has tried most all the anti-seizure mediations, the Vagus Nerve Stimulator,
dietary therapy, and is currently in a device clinical trial in California. The frequency
and severity of the seizures have decreased and that is where Brown
sees hope. In her work with the EFH, Brown sees a reason.
Sharon’s Ride.Run.Walk serves as the EFH’s largest annual fundraiser for its
programs and services. According to Brown, epilepsy is a condition that many
are disinclined to talk about–an unfortunate dilemma for those working hard
to work to dispel the myths and misconceptions surrounding epilepsy. ‘Too
many people do not understand epilepsy and this lack of understanding leads
to fear, discrimination and social stigma,’ Brown said. ‘We want to eliminate
the stigma and tell people living with epilepsy “You are not alone”. Events like
Sharon’s Ride.Run.Walk are crucial in helping to get the word out. In fact,
Brown said last year she received a call from a woman in Waianae who had
just learned about Sharon’s Ride.Run.Walk through an article. The woman was
delighted to know there was such an event.

Bike Obstacle Course

This January 27 Sharon’s Ride.Run.Walk will take the stage again at Diamond
Head and offer participants an opportunity to support the EFH’s aim of increasing
epilepsy awareness. Cyclists, runners and walkers will have a variety of
events to test their mettle or enjoy the camaraderie. The popular Bike Obstacle
Course and Bike Safety Program for the keiki will be back as well as last year’s
popular Team Incentives.

Family Affair

Over the years, Sharon’s Ride.Run.Walk has become a family affair for Brown
with both her husband Les and Daniel helping out on event morning. Brown
would love to see increased participation of those living with epilepsy and their
families–whether it be through the various athletic offerings, volunteering or
even just coming out to enjoy the gathering. ‘Last year we doubled our number
of registered participants, we had exciting team participation through our
Team Incentive prizes and we had terrific volunteers,’ Brown shared. However,
the ultimate goal remains true and steady. ‘We want to increase epilepsy
awareness and Sharon’s Ride.Run.Walk. is a great way to do so.’
For more information contact EFH at (808) 528-3058
or visit www. hawaiiepilepsy. com Sharon’s Ride 2013

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Hawaii Sport Mag. is a locally produced sports magazine in the state of Hawaii. Covering swimming, biking, running, triathlon and Stand Up Paddleboard.

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